We had family in town for Thanksgiving, from both of our families, which was a perfect opportunity for some outside perspective for me. None of these family members have seen Todd since before he had his stroke, so I was very interested to see how they found him now, as it's pretty difficult for me to see the incremental progress, being with him nearly every moment of every day.
I'm afraid that I kind of jumped on them for input, and I hope I didn't come across as insensitive or rude, but as I've told so many people, I don'thave the time or energy, or emotional wherewithall to beat around the bush, or worry about causing offence (or being offended, so don't worry, it does go both ways) or picking up on social cues or body language, or any of that. But the verdict was that he is changed, though not necessarily for the worse. That the stroke has aged him, or perhaps a better word would be matured him. He's slower, in movement, speech, and thought, and more deliberate. Which, if you knew Todd pre-stroke (or Todd v1.0 as his brother likes to call him) you would know that that isn't necessarily a bad thing. Todd's family kept forgetting that he had a stroke, and needed special consideration in things like noise level and physical labor. (Of course, they made every consideration, it was just hard to remember that he wasn't just tired, or on NiQuil or something normal like that.)
Todd has been making amazing strides lately. He gets himself up every day at a reasonable hour (before 10:00 a.m.) and I don't have to nag him to get out the door. In fact it's back to being pretty even as to who is responsible for making us late. Because we were never punctual people to begin with.
Each of his therapists are amazed at the progress he's made. He didn't see them much for a couple of weeks, due to illness (theirs and ours) and one was on vacation, and in that time he progressed a ton, though we didn't really see it at the time.
In talking to one of my sisters-in-law, I realized that I have a hard time quantifying Todd's progress, so I'm going to give it my best shot. In addition to the waking himself up (without an alarm by the way, which is more huge than it probably sounds) he can:
*Complete tasks with his therapists with relative ease that just a month ago were very difficult, both in the cognative ability to think it through, and generally stay on task with out getting distracted (and when he does, can redirect himself to get back on task.)
*Stay on topic in a conversation. When he does get tangential, it's a much smaller leap for outsiders to follow, and he's usually able to get himself back on track, or explain how he made the leap.
*Work on the computer. He has been doing a lot with our computer, and with my brother-in-law Devin's help, has replaced the power supply and hard drive, reformatted and reinstalled everything, backed up everything, and has been working on thelins.org, his family website, of which he was the web master. Other than the occasional hiccup, he's done great.
*Understand that some of the difficulties that he faces (like with crowds and noise) may never go away completely, but he is learing to compensate for his defacits in productive ways.
We hosted Thanksgiving Dinner for my side of the family at our house, and, well, it was a lesson in what not to do. It was just too much, for both of us, really. Oliver too, for that matter. But we were able to take some lessons from it, like that Todd really does need rest breaks, often, and needs to take them before he feels like he needs one. And that ear plugs are a good thing. And that we won't be hosting that many people again. At least, not for A LONG time.
The next big things on the horizon are getting him back behind a wheel, and repeating his cognative testing. In the next two weeks his OT will check out a student driver car, (the kind with the extra "just in case" set of brakes) and begin the steps to approve him to drive. They will approve him in incremental steps, for example, if he does ok with her, he may be able to drive on city streets, in the day time, without the radio, and with only me in the car with him, and move on from there.
The cognative testing will be done on Dec. 8th. We are hopeful that he will be approved to go back to work, but we know it may still be a little while. But things are progressing. I feel a lot more positive than I have in a long while.
The other perspective that I'm very interested in is when Todd's mom Sue comes to visit for Christmas. I know that she'll be amazed at how well Todd is doing, and she's really the only person who can give me an update from the perspective of someone who has seen Todd since his stroke, but not for a while. She was here for the month of August, basically from the time Todd was well enough to go home from the hospital, so I'm very interested in the progress that she sees.
I'm certain that all the prayers that are still offered in Todd's and our family's behalf are being heard, and the blessings are felt. I'm so grateful for all of you and your support. I'm grateful for the power of God's holy priesthood, and having worthy holders of it in my life, who were able to give not just one, but MANY blessings each of which independantly promised Todd's full recovery, which we are seeing in action before our very eyes. God is good.
Sunday, November 30, 2008
Thursday, November 13, 2008
We are still alive
This is a cross post from my other blog, but since that one's private, and I thought this pertained to this blog as well, I'm posting the same thing on here. If you read both, please forgive my redundancy.
It's been forever since I updated this blog. Or Todd's stroke blog. We're here, though. Still alive. We haven't dropped off the face of the earth, and we don't hate you. We've just been involuntarily booted off line for a while.
Our hard drive crashed, and we stopped breathing for a second (or a couple days) thinking we'd lost everything. Everything. All our pictures. Thankfully, Todd was able to recover it, the hard drive had not completely failed, but we went ahead and bought a new one (along with a new power supply) so that we could sleep a little better at night, knowing that all our precious data was safe and sound. Merry Christmas to us. Then we had all the fun of new installs, etc, and yadda yadda, we're finally back on line.
And thank goodness. I was starting to freak out, not being able to do my on line banking. Et Cettera. I wish I were one of those people who could disconnect and be happy about it, and go about my day buisily saving the planet or what not, but I can't. I'm not. I (heart) the internet, peeps. Can't live without it. And now that we're back on line I can tell you some good news.
Todd was awarded Long Term Disability through his (former) employer. It's not enough to live on, but it's enough to pay our mortgage. And he will receive it as long as he is eligible, until he's 65, if need be (which it won't, right? Right?) They will also help with him with returning to work, or vocational training should he not be able to return to his chosen career (it's called Vocational Rehab, I think.) And, as our caseworker pointedly told me, as a caregiver to a brain injury survivor herself, they have benefits for caregivers too. I'm guessing in the form of crisis hotlines, or counceling, or some such.
The other good bit of news is that our COBRA insurance has FINALLY been reinstated, so we can start billing all Todd's spendy drugs to the insurance company again. And be reimbursed for the $1000+ we've paid out of pocket this month. Yep, like the 2-month supply of one that I was lead to believe he'd be on long-term, and was rapidly transitioned off of. And several others that we paid for before I had the good sense to start filling in week-or-less incraments. You survive a stroke, but then the cost of the medications will kill you with a heart attack. Can you say $20 per pill? F'reals. And oh yes, COBRA is not cheap. But we only put Todd and Oliver on it, and part of the LTD package includes them paying some of Todd's portion, so really, we're pretty lucky. We're not paying the most you've ever hear of. Though it's still not cheap. And hey, if you know anyone who takes Lyrica, Depakote (generic) or Depakote ER, send them my way. We can trade for something. Say, money, for example. I'm not saying I'm a drug dealer, but if we have it and don't need it, and you need it but don't have it, well, it seems silly not to work out something to our mutual benefit, no?
So, the good news I suppose is that our savings will last us a little longer. There's still this dreadful day of recconing looming out there in the murky future, on which a decision will have to be made about what to do about the ever dwindeling savings, and lack of gainful employment, but I've given myself until after the first of the year to acknowledge it. Because there's just no way I'll be able to get throught the already hectic and stressful holiday season (made moreso by said dwindling and lack) if I also have to worry about finding a job, and all the logistics that go along with Working Mommy, Disabled Daddy, and Special Needs Son. Ug. And here comes the panic attack, right on cue.
I thought I'd apply for WIC, since we have no money, and strangely still need to eat. I guess I should have gotten on the ball sooner though, and done it before the LTD was granted, because now apparently we make too much money. I suppose I should be happy that even living off disability we are above the federal poverty line, but it just puts us back into that damned if we do, damned if we don't situation that has plagued us since Todd's stroke. We don't make enough to be self sufficent, pay all our bills, but we make too much (or have too many "liquid assets") to receive any aid from the programs that we've been paying into since we were 16. This is why people declare bankruptcy, and forclose on their homes.
At the risk of this post being a total downer, let me reassure you that we DO see the blessings. We have been blessed beyond measure, and recently another blessing was brought to our attention. We met a wonderful guy at LDS hospital, who happenes to be a survivor of a nearly identical stroke. However this man has suffered more physical imparement, and has no use of the left side of his body, and as such, is confined to a motorized wheel chair. Which Oliver, incidentally, thinks is just about the coolest thing since Yogurt. We had the opportunity to get to know him better, and meet his wife at the Brain Injury Support Group (which was fabulous, by the by) and decided that we need them to be our friends. When we got home that night, Todd and I were talking about getting together with them, and it struck us that it wouldn't be possible to invite them to dinner at our house. For starters, there are at minimum 4 stairs to even get into our house. Add to that that the bathrooms are either up or down a full flight fo stairs, and it hit us. How lucky are we that, with all Todd's dealing with, he has full use of his body. He can go up and down stairs no problem. Feed and bathe and dress himself. Heck, we raked and bagged leaves this morning. I can't even begin to think of what we'd be facing if Todd had suffered the physical affects of the same stroke, just after purchasing this stair-ridden house.
So blessed? Yes. Beyond measure. Thankful? Very. Still in need of lots and lots of help? Um. Yes.
Stay tuned for a very sad and pathetic post of things that we could really use help on. Cause this one is too long and already depressing enough. And I'm tired, and going to bed.
It's been forever since I updated this blog. Or Todd's stroke blog. We're here, though. Still alive. We haven't dropped off the face of the earth, and we don't hate you. We've just been involuntarily booted off line for a while.
Our hard drive crashed, and we stopped breathing for a second (or a couple days) thinking we'd lost everything. Everything. All our pictures. Thankfully, Todd was able to recover it, the hard drive had not completely failed, but we went ahead and bought a new one (along with a new power supply) so that we could sleep a little better at night, knowing that all our precious data was safe and sound. Merry Christmas to us. Then we had all the fun of new installs, etc, and yadda yadda, we're finally back on line.
And thank goodness. I was starting to freak out, not being able to do my on line banking. Et Cettera. I wish I were one of those people who could disconnect and be happy about it, and go about my day buisily saving the planet or what not, but I can't. I'm not. I (heart) the internet, peeps. Can't live without it. And now that we're back on line I can tell you some good news.
Todd was awarded Long Term Disability through his (former) employer. It's not enough to live on, but it's enough to pay our mortgage. And he will receive it as long as he is eligible, until he's 65, if need be (which it won't, right? Right?) They will also help with him with returning to work, or vocational training should he not be able to return to his chosen career (it's called Vocational Rehab, I think.) And, as our caseworker pointedly told me, as a caregiver to a brain injury survivor herself, they have benefits for caregivers too. I'm guessing in the form of crisis hotlines, or counceling, or some such.
The other good bit of news is that our COBRA insurance has FINALLY been reinstated, so we can start billing all Todd's spendy drugs to the insurance company again. And be reimbursed for the $1000+ we've paid out of pocket this month. Yep, like the 2-month supply of one that I was lead to believe he'd be on long-term, and was rapidly transitioned off of. And several others that we paid for before I had the good sense to start filling in week-or-less incraments. You survive a stroke, but then the cost of the medications will kill you with a heart attack. Can you say $20 per pill? F'reals. And oh yes, COBRA is not cheap. But we only put Todd and Oliver on it, and part of the LTD package includes them paying some of Todd's portion, so really, we're pretty lucky. We're not paying the most you've ever hear of. Though it's still not cheap. And hey, if you know anyone who takes Lyrica, Depakote (generic) or Depakote ER, send them my way. We can trade for something. Say, money, for example. I'm not saying I'm a drug dealer, but if we have it and don't need it, and you need it but don't have it, well, it seems silly not to work out something to our mutual benefit, no?
So, the good news I suppose is that our savings will last us a little longer. There's still this dreadful day of recconing looming out there in the murky future, on which a decision will have to be made about what to do about the ever dwindeling savings, and lack of gainful employment, but I've given myself until after the first of the year to acknowledge it. Because there's just no way I'll be able to get throught the already hectic and stressful holiday season (made moreso by said dwindling and lack) if I also have to worry about finding a job, and all the logistics that go along with Working Mommy, Disabled Daddy, and Special Needs Son. Ug. And here comes the panic attack, right on cue.
I thought I'd apply for WIC, since we have no money, and strangely still need to eat. I guess I should have gotten on the ball sooner though, and done it before the LTD was granted, because now apparently we make too much money. I suppose I should be happy that even living off disability we are above the federal poverty line, but it just puts us back into that damned if we do, damned if we don't situation that has plagued us since Todd's stroke. We don't make enough to be self sufficent, pay all our bills, but we make too much (or have too many "liquid assets") to receive any aid from the programs that we've been paying into since we were 16. This is why people declare bankruptcy, and forclose on their homes.
At the risk of this post being a total downer, let me reassure you that we DO see the blessings. We have been blessed beyond measure, and recently another blessing was brought to our attention. We met a wonderful guy at LDS hospital, who happenes to be a survivor of a nearly identical stroke. However this man has suffered more physical imparement, and has no use of the left side of his body, and as such, is confined to a motorized wheel chair. Which Oliver, incidentally, thinks is just about the coolest thing since Yogurt. We had the opportunity to get to know him better, and meet his wife at the Brain Injury Support Group (which was fabulous, by the by) and decided that we need them to be our friends. When we got home that night, Todd and I were talking about getting together with them, and it struck us that it wouldn't be possible to invite them to dinner at our house. For starters, there are at minimum 4 stairs to even get into our house. Add to that that the bathrooms are either up or down a full flight fo stairs, and it hit us. How lucky are we that, with all Todd's dealing with, he has full use of his body. He can go up and down stairs no problem. Feed and bathe and dress himself. Heck, we raked and bagged leaves this morning. I can't even begin to think of what we'd be facing if Todd had suffered the physical affects of the same stroke, just after purchasing this stair-ridden house.
So blessed? Yes. Beyond measure. Thankful? Very. Still in need of lots and lots of help? Um. Yes.
Stay tuned for a very sad and pathetic post of things that we could really use help on. Cause this one is too long and already depressing enough. And I'm tired, and going to bed.
Tuesday, October 14, 2008
Dang it, I forgot to take pictures!
We all managed to get out of the house by 10:00 today, which I'm pretty sure is a record of late. Unfortunately we were headed out to get to a Todd appointment which was at, you guessed it, 10:00. Fortunately it was with a therapist who happened to have the morning free, and was kind enough to consent to moving the appointment back to 10:30. Oh yes, and we were still a few minutes late. But it was all good. Oliver had a great time playing in the waiting room again, and gave lots of hugs to Diane, the secretary, who adores him. And he didn't break anything. Or throw up.
Got home and had some lunch, then Oli went down for a nap, and Todd and I worked in the garage some. Schlepped some boxes into the house, moved some stuff around, and then Oliver woke up, so that put an end to the productivity, at least where I was concerned.
Todd, on the other hand, rocked it. His slave driver, eh hem, therapist Heather came to our house for today's session to check him off on doing man-things required around the house, such as mowing the lawn. Thankfully, even through the snowstorm which had blanketed the mower for a morning, it still worked, and Todd was able to successfully mow the entire front lawn, thanks to some help, in the form of gas, from a neighbor down the street who happened by at an opportune moment (thank you, Doug!) We truly have the best neighbors. He also lent us his weed whacker, (is whacker spelled with an h? Wacker? Whacker? I dunno) so that we can edge the grass, mow down the nasties on the side of the house, and 86 the ground cover creeping out of the cracks in the drive way. However, that will probably be my job (or that of some helpful person who may stop by at some point looking for something to do. Hint hint, fathers :) ) Todd also got out a ladder and trimmed away the branches of the crazy alien bush/tree thingie that is trying to escape from the neighbor's yard, and which was scraping against the side of the house and giving me the willies at night. And he didn't fall off the ladder or cut his arm off. He did scare Heather and I though with a comment about seeing if he can find a hedge trimmer to borrow to trim back some more overhang further down. However at our terrified and "is he talking crazy? He's got to be talking crazy" looks, he reassured us that HE would not be using it, but volunteered his dad to wield the mini chainsaw. So if anyone has one of those, can we borrow it for Todd to NOT use?
Soon after Heather left, it was time for dinner, so I grabbed Todd tacos (Tuesday is Taco night at our house, thanks to Del Taco's 3/$1 deal!) and then Oliver and I went to the church for enrichment night. Hurray for nursery! I had a good time (though I still feel as anxious as a new kid in 7th grade) and Oliver did fine, I think.
So all in all, a highly successful day. Cause did you notice that there was no mention in there Todd taking a nap? Nope!
Got home and had some lunch, then Oli went down for a nap, and Todd and I worked in the garage some. Schlepped some boxes into the house, moved some stuff around, and then Oliver woke up, so that put an end to the productivity, at least where I was concerned.
Todd, on the other hand, rocked it. His slave driver, eh hem, therapist Heather came to our house for today's session to check him off on doing man-things required around the house, such as mowing the lawn. Thankfully, even through the snowstorm which had blanketed the mower for a morning, it still worked, and Todd was able to successfully mow the entire front lawn, thanks to some help, in the form of gas, from a neighbor down the street who happened by at an opportune moment (thank you, Doug!) We truly have the best neighbors. He also lent us his weed whacker, (is whacker spelled with an h? Wacker? Whacker? I dunno) so that we can edge the grass, mow down the nasties on the side of the house, and 86 the ground cover creeping out of the cracks in the drive way. However, that will probably be my job (or that of some helpful person who may stop by at some point looking for something to do. Hint hint, fathers :) ) Todd also got out a ladder and trimmed away the branches of the crazy alien bush/tree thingie that is trying to escape from the neighbor's yard, and which was scraping against the side of the house and giving me the willies at night. And he didn't fall off the ladder or cut his arm off. He did scare Heather and I though with a comment about seeing if he can find a hedge trimmer to borrow to trim back some more overhang further down. However at our terrified and "is he talking crazy? He's got to be talking crazy" looks, he reassured us that HE would not be using it, but volunteered his dad to wield the mini chainsaw. So if anyone has one of those, can we borrow it for Todd to NOT use?
Soon after Heather left, it was time for dinner, so I grabbed Todd tacos (Tuesday is Taco night at our house, thanks to Del Taco's 3/$1 deal!) and then Oliver and I went to the church for enrichment night. Hurray for nursery! I had a good time (though I still feel as anxious as a new kid in 7th grade) and Oliver did fine, I think.
So all in all, a highly successful day. Cause did you notice that there was no mention in there Todd taking a nap? Nope!
Monday, October 13, 2008
Back on the grid
We got the used phone my mother-in-law sent today, and got it charged up and connected, so Todd once again has a phone. And I can once again call him from the store/car/preschool/basement. Such a relief. It's been ridiculously difficult for the last little while without us both having phones, and no house phone.
Thanks Sue! We'll try really hard to keep it out of the dog's water this time.
Thanks Sue! We'll try really hard to keep it out of the dog's water this time.
Sunday, October 12, 2008
The cold hard facts
Last night Todd went in for his sleep study. He'd argued with me all day about it, and kept trying to get out of going with excuses like "Oliver's sick" or "You just want me to go because you can't stand the snoring." Both of which were true, but I had to insist that he go for his own health. Our neighbor, who came over to assist Todd with a blessing for Oliver, finally convinced him of the benefit of getting it taken care of sooner than later when he told Todd about a friend of his who now has heart trouble and has to be on oxygen 24/7 because he didn't.
So off we went to drop Todd off at the ICH Sleep Disorder center, which is in a little house by Fashion Place Mall. Then Oliver and I returned home for a fun night of single-parenting a sick kid. Miraculously, Oliver went to bed after eating some yogurt, and slept all night. I, on the other hand, didn't get much sleep, and 5:30 A.M. came knocking awfully early.
Especially when I woke up to this:
Snow, people! And it's not even half way through October! With current energy costs I had high hopes of being able to tough it out and not turn on the heat until November. But with a sick kid, and now snow, it's time. And of course we haven't been able to get space in the garage to park the car yet. There's space, but it's not all together. We'll work today on combining those chunks of clear space, and see if we can't get a spot big enough for one car and one scooter. I'm hoping and praying that we get another warm spell before winter hits in earnest. I knew this storm was coming, but we still weren't able to do all that we needed to do to winterize the house/yard. Today sprinklers must be dealt with, next week I must look into adding insulation in the attic, getting that space in the garage, and if it dries out, mowing the lawn one last time before getting the mower emptied and stored.
Despite the snow, we made it home without incident, and Todd headed straight back up to bed. We should get the results of the study in about 4 weeks. Nice.
I, on the other hand, will not be getting any more sleep, because Oliver decided that he's up for the day. At least he seems to be feeling better.
So off we went to drop Todd off at the ICH Sleep Disorder center, which is in a little house by Fashion Place Mall. Then Oliver and I returned home for a fun night of single-parenting a sick kid. Miraculously, Oliver went to bed after eating some yogurt, and slept all night. I, on the other hand, didn't get much sleep, and 5:30 A.M. came knocking awfully early.
Especially when I woke up to this:
Snow, people! And it's not even half way through October! With current energy costs I had high hopes of being able to tough it out and not turn on the heat until November. But with a sick kid, and now snow, it's time. And of course we haven't been able to get space in the garage to park the car yet. There's space, but it's not all together. We'll work today on combining those chunks of clear space, and see if we can't get a spot big enough for one car and one scooter. I'm hoping and praying that we get another warm spell before winter hits in earnest. I knew this storm was coming, but we still weren't able to do all that we needed to do to winterize the house/yard. Today sprinklers must be dealt with, next week I must look into adding insulation in the attic, getting that space in the garage, and if it dries out, mowing the lawn one last time before getting the mower emptied and stored.
Despite the snow, we made it home without incident, and Todd headed straight back up to bed. We should get the results of the study in about 4 weeks. Nice.
I, on the other hand, will not be getting any more sleep, because Oliver decided that he's up for the day. At least he seems to be feeling better.
Tuesday, September 30, 2008
Gratitude
Someone recently commented on my personal blog that a remark I made to her in a time of need really helped, and it helped me to know that something I did/said helped someone else. To that end, I hope that what I have to say will help someone else in like manner.
I've been thinking a lot about gratitude lately, and I have a lot to be grateful for. Recently I went to the credit union branch to deposit a check that was given to me, and when the teller handed me the receipt showing the current balance, I was amazed. It brought tears to my eyes to see the generosity that people have shown to our family. I know who a couple of you are, but I won't mention names or specifics on here because I don't know who to thank for the anonymous contributions. But I wanted each of you to know that I am grateful, and that it has helped us tremendously. As the bills have now started coming in, I'm flooded with relief and humility when I'm able to just write out the check. Well, I pay on line, but still. To know that I don't have to stress about where that money is going to come from, it's just there, thanks to you wonderful people, waiting to be used. Thank you, each of you, from the bottom of my heart.
I also have been aware lately that many, many people are reading this blog. Just the fact that you read means a lot to me, to know that you care enough to check the blog. I've added this site to my Google analytics, so in a few days I should have some stats to report. Should be interesting, and I wish I'd done it a long time ago. Ah well. However the point is that because so many of you read, including family, friends, coworkers, ward members, neighbors, etc, I wanted to publicly thank some people specifically, to recognize them, let them know that they really did help, and made an immediate impact on our family, and my ability to cope with the present (on going) Trial.
My sisters. Especially Tali and Halley. When the chips are down, there's no one I'd rather have on my team. They were my right and left hands when Todd was first hospitalized, fetching and carying, tending Oliver (for days at a time) watching the dogs, getting Todd's stuff from work, setting up the trust fund, and myriad other tasks that I just couldn't have done myself.
My mother-in-law Sue, without whom I would certainly have been shipped off to the funny farm long ago. For coming, and staying, and cooking and cleaning, and tending, and listening, and understanding, and advising and helping. 2
My Neighbors, Jan and Jim. Saints in the truest sense of the word, I'm telling you. Thank you for being allert to something being not right at our house, and caring for a couple you'd barely (if ever) met. For checking our mail, keeping our garrage opener, watering the lawn, and for sitting by me in Relief Society.
Our Hometeacher and former Elders Quorum President, Jason. For checking on us, mowing the lawn, and just being there.
Our dear friends, Misty and Jake. I couldn't ask for better friends. For pinning me down and making me take the time to go to the temple. For watching Oliver, letting the dogs out, and for listening to me complain.
Our wards, past and present, especially Anne and Kathy for organizing them, for all the dinners both at the hospital and in my freezer. "That there shal not be room enough to receive it." Very nearly.
And Everyone else, for the prayers, the fasting, putting our names in temples around the world, and the continual support and love. Please know that each and every night we pray for all of you, and ask for the choicest blessings in your behalf. Please know that you made a difference.
I've been thinking a lot about gratitude lately, and I have a lot to be grateful for. Recently I went to the credit union branch to deposit a check that was given to me, and when the teller handed me the receipt showing the current balance, I was amazed. It brought tears to my eyes to see the generosity that people have shown to our family. I know who a couple of you are, but I won't mention names or specifics on here because I don't know who to thank for the anonymous contributions. But I wanted each of you to know that I am grateful, and that it has helped us tremendously. As the bills have now started coming in, I'm flooded with relief and humility when I'm able to just write out the check. Well, I pay on line, but still. To know that I don't have to stress about where that money is going to come from, it's just there, thanks to you wonderful people, waiting to be used. Thank you, each of you, from the bottom of my heart.
I also have been aware lately that many, many people are reading this blog. Just the fact that you read means a lot to me, to know that you care enough to check the blog. I've added this site to my Google analytics, so in a few days I should have some stats to report. Should be interesting, and I wish I'd done it a long time ago. Ah well. However the point is that because so many of you read, including family, friends, coworkers, ward members, neighbors, etc, I wanted to publicly thank some people specifically, to recognize them, let them know that they really did help, and made an immediate impact on our family, and my ability to cope with the present (on going) Trial.
My sisters. Especially Tali and Halley. When the chips are down, there's no one I'd rather have on my team. They were my right and left hands when Todd was first hospitalized, fetching and carying, tending Oliver (for days at a time) watching the dogs, getting Todd's stuff from work, setting up the trust fund, and myriad other tasks that I just couldn't have done myself.
My mother-in-law Sue, without whom I would certainly have been shipped off to the funny farm long ago. For coming, and staying, and cooking and cleaning, and tending, and listening, and understanding, and advising and helping. 2
My Neighbors, Jan and Jim. Saints in the truest sense of the word, I'm telling you. Thank you for being allert to something being not right at our house, and caring for a couple you'd barely (if ever) met. For checking our mail, keeping our garrage opener, watering the lawn, and for sitting by me in Relief Society.
Our Hometeacher and former Elders Quorum President, Jason. For checking on us, mowing the lawn, and just being there.
Our dear friends, Misty and Jake. I couldn't ask for better friends. For pinning me down and making me take the time to go to the temple. For watching Oliver, letting the dogs out, and for listening to me complain.
Our wards, past and present, especially Anne and Kathy for organizing them, for all the dinners both at the hospital and in my freezer. "That there shal not be room enough to receive it." Very nearly.
And Everyone else, for the prayers, the fasting, putting our names in temples around the world, and the continual support and love. Please know that each and every night we pray for all of you, and ask for the choicest blessings in your behalf. Please know that you made a difference.
Saturday, September 20, 2008
Just a quick FYI
For the time being, if you need to call Todd, you'll have to call my phone, as his now out of commission, until we buy a new one. Side note, anyone have an old Verizon phone we could use so we don't have to buy a new one? It should be an old one that you really don't need back, as it's highly probable that it will one day meet the same fate as it's predecessor, that of Death by Dog Water.
The joys of Two.
Don't ask me what the draw is, but for some reason Oliver finds it fascinating to abscond with random articles (sometimes his own toys, books, shoes, sometimes random household junk, sometimes small electronics, i.e. cell phones, PDAs, PSPs, remote controls, cordless mouses...) and scurry stealthily up to our master bathroom, where the dogs water was safe for a blissful 3 seconds, and make like Michael Phelps. But here's the weird part. He then grabs the little swimmer out and pulls up his shirt and sticks it, dripping wet and cold, on his bare belly.
???
Yeah. Either that, or sometimes he just sucks the icky disgusting dog-backwash water off.
Oh, and while I'm on the subject, if you're at our house, you might want to leave your valuables in your car. Unless they are waterproof. Or you are looking for an excuse to get a new one...
The joys of Two.
Don't ask me what the draw is, but for some reason Oliver finds it fascinating to abscond with random articles (sometimes his own toys, books, shoes, sometimes random household junk, sometimes small electronics, i.e. cell phones, PDAs, PSPs, remote controls, cordless mouses...) and scurry stealthily up to our master bathroom, where the dogs water was safe for a blissful 3 seconds, and make like Michael Phelps. But here's the weird part. He then grabs the little swimmer out and pulls up his shirt and sticks it, dripping wet and cold, on his bare belly.
???
Yeah. Either that, or sometimes he just sucks the icky disgusting dog-backwash water off.
Oh, and while I'm on the subject, if you're at our house, you might want to leave your valuables in your car. Unless they are waterproof. Or you are looking for an excuse to get a new one...
Tuesday, September 16, 2008
The Marathon is over
I'll have to post a longer explanation later, when I'm not so tired. Please be patient. It was a Long day.
We got up at about 8:00, and I'm thrilled to report that after Monday's fiasco, which I will not go into other than to say that Yours Truly is utterly ashamed and contrite after her two-year-old behavior, Todd got himself up with no nagging on my part, got himself ready to go, and then asked what he could do to help me with Oliver. I was (am) very proud of him, and this was after we both stayed up way too late talking to one of my sisters.
We didn't have anyone to watch Oli, so we had to take him with, which was... not ideal. None of us, Oliver and the doctor included, were happy with the arrangement, so Oli ended up at another sister's house, while Dr. Cain took Todd through his paces.
The point of today's testing was to determine how Todd is doing cognitively, as compared to the testing that was done when he was an inpatient at IMC. Again, sorry to leave you hanging, there's really SO much that went into it, but suffice it to say that Todd is very much improved. No real surprise there though. He started at close to normal in a couple of areas, including his reaction time, but in other more complex, or "executive functions" he was well below normal, and the testing today revealed that he is now within the range of normal. He's still not yet up to par to where he probably was pre-stroke, but as he didn't do the tests before he had the stroke, that Todd Normal is pretty much an educated guess.
The Dr. said that based on the reports that he got on Todd before meeting him, he expected him to be "much worse" than he found him to be. So that was really good to hear, for both of us. We're both there, in the trenches day in and day out, so it's nice to receive that kind of feedback. Incidentally, the sister that we were up too late talking to hadn't seen Todd in about a month, and she, too, commented on how vastly improved he was in that time.
We learned an aweful lot about the brain, and more specifically, Todd's brain. How it works. How it doesn't work, and how it tries to compensate. Very technical stuff that I found terribly fascenating, and I think Todd found terribly frustrating and discouraging.
I was left with a profound sense that as sucky and crappy as things are now, they won't forever remain that way. I found an incredible amount of Hope in the things that we discussed, the things that I learned, and if finally. Finally! understand what Todd means when he tells me, on a daily basis, that he "hates this." Essentially, it's very difficult for people, (raises hand) to remember that though Todd appears fine in so many ways, that he's not "better" yet. That his excessive sleepiness (15-is hours a day?) is not an indication of apathy, depression, or laziness. The location and type of stroke that Todd had is rare. The rarest (that's my guy! When has Todd ever been typical? We scoff at typical!)
And this was a huge wake-up call for me (as I know it has been for many people.) For me it was the reminder that my role is to be Todd's wife, not another therapist. He has enough therapists, but I'm the only one who can be his wife. And it's going to be really, really tough for me to take that hat off. I mean, I've been wearing the Therapist hat along with my Mommy hat for Oliver for two years now. And I was just lumping them all together, but it's really not the same at all. Oliver's learning things and making connections for the first time, where Todd already knows this stuff.
As you have probably read previously, the Thalamus is the brain's message center. So where typically a stroke survivor has some paralysis, or speech affectation, because of the location of Todd's stroke, the affects are much more far reaching, but minute in detail, much less noticable to the casual observer.
Mostly the messages aren't getting to the frontal lobe completely, or correctly. The frontal lobe deals with the mind's executive funtions, or the more complex reasoning and decision-making. Messages come in from the eyes and ears (mainly) and the brain then makes decisions, judgements, and connects meaning based on that information. Well, when the information is not relayed completly, the brain automatically fills in the gaps by making educated guesses. If it's a small gap, it's pretty easy to form an educated guess and be pretty close. The further the gap of information, the less educated the guess is. As the Dr. explained, a person could say something and mean X, while Todd understood Y. And everyone else around got X, and can't understand how Todd got Y, and why he just can't understand X. And they get frustrated and upset because they think he's being "stuborn" or "unreasonable." And Todd gets frustrated, because he know's he's missing X... You can see where that could cause problems.
It made a lot of things that have happened in the past 2 months very clear, and I finally get it. I hope I've been able to make this make sense to you all. Because as you who know him and have talked to him have probably noticed, he makes some pretty weird comments, and you're left wondering... "Huh??" Yeah, it makes no sense. To you. To Todd, it made perfect sense. So please be patient with him.
Oh, the other thing is that with this kind of stroke, it can create a lot of "psychological" symptoms, like depression, anxiety, etc. that are not truly psychological. Meaning that in that respect, the problem is not metaphysical. Damage to that area of the brain affects emotion and mood. So Todd could seem depressed, but mentally, at least psychologically speaking, he's not. Ten you add in the complication that he's been (is going) through a traumatic life experience, and you get the situational stuff... Ok, that's a much more abstract and confusing concept, so if that makes any sense, great. If not, forget I mentioned it.
And I just realized that through my sleep-deprived fog, I've pretty much written about everything. If I remember anything important later (i.e. tomorrow, after I've gotten a little sleep) I'll post again.
We got up at about 8:00, and I'm thrilled to report that after Monday's fiasco, which I will not go into other than to say that Yours Truly is utterly ashamed and contrite after her two-year-old behavior, Todd got himself up with no nagging on my part, got himself ready to go, and then asked what he could do to help me with Oliver. I was (am) very proud of him, and this was after we both stayed up way too late talking to one of my sisters.
We didn't have anyone to watch Oli, so we had to take him with, which was... not ideal. None of us, Oliver and the doctor included, were happy with the arrangement, so Oli ended up at another sister's house, while Dr. Cain took Todd through his paces.
The point of today's testing was to determine how Todd is doing cognitively, as compared to the testing that was done when he was an inpatient at IMC. Again, sorry to leave you hanging, there's really SO much that went into it, but suffice it to say that Todd is very much improved. No real surprise there though. He started at close to normal in a couple of areas, including his reaction time, but in other more complex, or "executive functions" he was well below normal, and the testing today revealed that he is now within the range of normal. He's still not yet up to par to where he probably was pre-stroke, but as he didn't do the tests before he had the stroke, that Todd Normal is pretty much an educated guess.
The Dr. said that based on the reports that he got on Todd before meeting him, he expected him to be "much worse" than he found him to be. So that was really good to hear, for both of us. We're both there, in the trenches day in and day out, so it's nice to receive that kind of feedback. Incidentally, the sister that we were up too late talking to hadn't seen Todd in about a month, and she, too, commented on how vastly improved he was in that time.
We learned an aweful lot about the brain, and more specifically, Todd's brain. How it works. How it doesn't work, and how it tries to compensate. Very technical stuff that I found terribly fascenating, and I think Todd found terribly frustrating and discouraging.
I was left with a profound sense that as sucky and crappy as things are now, they won't forever remain that way. I found an incredible amount of Hope in the things that we discussed, the things that I learned, and if finally. Finally! understand what Todd means when he tells me, on a daily basis, that he "hates this." Essentially, it's very difficult for people, (raises hand) to remember that though Todd appears fine in so many ways, that he's not "better" yet. That his excessive sleepiness (15-is hours a day?) is not an indication of apathy, depression, or laziness. The location and type of stroke that Todd had is rare. The rarest (that's my guy! When has Todd ever been typical? We scoff at typical!)
And this was a huge wake-up call for me (as I know it has been for many people.) For me it was the reminder that my role is to be Todd's wife, not another therapist. He has enough therapists, but I'm the only one who can be his wife. And it's going to be really, really tough for me to take that hat off. I mean, I've been wearing the Therapist hat along with my Mommy hat for Oliver for two years now. And I was just lumping them all together, but it's really not the same at all. Oliver's learning things and making connections for the first time, where Todd already knows this stuff.
As you have probably read previously, the Thalamus is the brain's message center. So where typically a stroke survivor has some paralysis, or speech affectation, because of the location of Todd's stroke, the affects are much more far reaching, but minute in detail, much less noticable to the casual observer.
Mostly the messages aren't getting to the frontal lobe completely, or correctly. The frontal lobe deals with the mind's executive funtions, or the more complex reasoning and decision-making. Messages come in from the eyes and ears (mainly) and the brain then makes decisions, judgements, and connects meaning based on that information. Well, when the information is not relayed completly, the brain automatically fills in the gaps by making educated guesses. If it's a small gap, it's pretty easy to form an educated guess and be pretty close. The further the gap of information, the less educated the guess is. As the Dr. explained, a person could say something and mean X, while Todd understood Y. And everyone else around got X, and can't understand how Todd got Y, and why he just can't understand X. And they get frustrated and upset because they think he's being "stuborn" or "unreasonable." And Todd gets frustrated, because he know's he's missing X... You can see where that could cause problems.
It made a lot of things that have happened in the past 2 months very clear, and I finally get it. I hope I've been able to make this make sense to you all. Because as you who know him and have talked to him have probably noticed, he makes some pretty weird comments, and you're left wondering... "Huh??" Yeah, it makes no sense. To you. To Todd, it made perfect sense. So please be patient with him.
Oh, the other thing is that with this kind of stroke, it can create a lot of "psychological" symptoms, like depression, anxiety, etc. that are not truly psychological. Meaning that in that respect, the problem is not metaphysical. Damage to that area of the brain affects emotion and mood. So Todd could seem depressed, but mentally, at least psychologically speaking, he's not. Ten you add in the complication that he's been (is going) through a traumatic life experience, and you get the situational stuff... Ok, that's a much more abstract and confusing concept, so if that makes any sense, great. If not, forget I mentioned it.
And I just realized that through my sleep-deprived fog, I've pretty much written about everything. If I remember anything important later (i.e. tomorrow, after I've gotten a little sleep) I'll post again.
Tuesday, September 9, 2008
Life rolls on
Saturday we celebrated our 11th anniversary. Todd took me to Wingers. Don't laugh, I know it's not all romantical, but it's good food, man, and it sounded good to both of us, and that's rare!
We had a great time. As we were finishing and getting ready to pay I ordered us a last round of drinks. The hard stuff. Vanilla Coke for me, and Cherry Coke for Todd. As he reached for the bill he inadvertently clipped his nice full glass, which in turn clipped his plate, broke into smitherines, and flooded the table, his lap right down to his Crocks. But don't fear, it somehow managed to miss the wings!
I insisted on photographic evidence. Contrary to how he looks, he wasn't mad, we had a good laugh, and the waitresses all probably thought that I was a horrible person. But it's for posterity, people!
We finally got Todd's contacts prescription. Thanks to a very kind secretary we didn't even have to pay for a contact fitting in addition, and she faxed it to Coscto the other day. Today Todd put his contacts back in, and while it will take some time to get readjusted after wearing glasses (and of a slightly different prescription, no less) for so long, he said that it is helping his vision. It didn't fix the looking problem, but at least now when he moves his eyes he can focus, and things in his periphial vision are not blurry.
Sunday we had a meeting with the bishop. He wanted to check on us and see how we were doing. I learned a lot about how Todd's mind is working in listening to him have a conversation with some one else. We talked about it after the bishop left. It's like his mind or his mouth doesn't know when or how to stop. So he gets to a point in what he's saying where normally you would pause, and the other person would interject something, but since his brain doesn't know how to stop, he just says "um" and then continues talking. And if he's exhausted what he's talking about he just starts talking about the next thing that his mind jumps to, and then he gets distracted and says things that he doesn't really mean. Or they come out wrong. So we talked about him noticing when he says "um" and just stopping there. We'll see how that works. It's pretty interesting to have to analyze the nuances of conversation dynamics. To borrow what someone else said, it's like Todd has to think about himself like he's on the outside, and at the same time, multi task that with actually having the conversation, finding the words, keeping on topic, organizing his thoughts, making eye contact, etc. All the things that we do normally without thinking about it. He has to think about it. Try it for a minute, or the next time you have a conversation with someone, and you'll get an inkling of how difficult it is, and how easy it is to get side tracked and distracted.
I wanted to bring this up today in his Speech therapy (which we have renamed Cognative therapy) but we took Oliver with us since it was only the one appointment, and we were running too late to drop him off at Auntie Tali's house. Next time...
The office staff there had a blast with Oliver. The secretary Dianne let him play with her resin frog, which he promptly broke. Then an OT brought out some of the therapy balls.
Oliver loved this planet-sized orange ball best. He pushed it clear down the hall, around the corner, and all the way down the next hall. Then I chased him back with it.
Dianne found some grahm crackers for Oliver to eat, since his mommy forgot not only toys and entertainment, but snacks too.
Oliver playing ball with Dianne
We ate lunch at Mickey Dees, then jetted home to drop off Todd, pick up the dogs, take Oli to preschool, take Doggies to the vet for shots, jet back, pick up Oliver, and finally return home. Exhausted. Cause in all of this running around poor Oli didn't get one speck of nap. He muscled through, getting punchier and clumsier as the day went on.
Phew. And now I've spent WAY too much time on the computer getting some "me" time in. Tomorrow is more therapy, and we have some guys coming to measure and give us an estimate on windows. Fun fun.
We had a great time. As we were finishing and getting ready to pay I ordered us a last round of drinks. The hard stuff. Vanilla Coke for me, and Cherry Coke for Todd. As he reached for the bill he inadvertently clipped his nice full glass, which in turn clipped his plate, broke into smitherines, and flooded the table, his lap right down to his Crocks. But don't fear, it somehow managed to miss the wings!
I insisted on photographic evidence. Contrary to how he looks, he wasn't mad, we had a good laugh, and the waitresses all probably thought that I was a horrible person. But it's for posterity, people!
We finally got Todd's contacts prescription. Thanks to a very kind secretary we didn't even have to pay for a contact fitting in addition, and she faxed it to Coscto the other day. Today Todd put his contacts back in, and while it will take some time to get readjusted after wearing glasses (and of a slightly different prescription, no less) for so long, he said that it is helping his vision. It didn't fix the looking problem, but at least now when he moves his eyes he can focus, and things in his periphial vision are not blurry.
Sunday we had a meeting with the bishop. He wanted to check on us and see how we were doing. I learned a lot about how Todd's mind is working in listening to him have a conversation with some one else. We talked about it after the bishop left. It's like his mind or his mouth doesn't know when or how to stop. So he gets to a point in what he's saying where normally you would pause, and the other person would interject something, but since his brain doesn't know how to stop, he just says "um" and then continues talking. And if he's exhausted what he's talking about he just starts talking about the next thing that his mind jumps to, and then he gets distracted and says things that he doesn't really mean. Or they come out wrong. So we talked about him noticing when he says "um" and just stopping there. We'll see how that works. It's pretty interesting to have to analyze the nuances of conversation dynamics. To borrow what someone else said, it's like Todd has to think about himself like he's on the outside, and at the same time, multi task that with actually having the conversation, finding the words, keeping on topic, organizing his thoughts, making eye contact, etc. All the things that we do normally without thinking about it. He has to think about it. Try it for a minute, or the next time you have a conversation with someone, and you'll get an inkling of how difficult it is, and how easy it is to get side tracked and distracted.
I wanted to bring this up today in his Speech therapy (which we have renamed Cognative therapy) but we took Oliver with us since it was only the one appointment, and we were running too late to drop him off at Auntie Tali's house. Next time...
The office staff there had a blast with Oliver. The secretary Dianne let him play with her resin frog, which he promptly broke. Then an OT brought out some of the therapy balls.
Oliver loved this planet-sized orange ball best. He pushed it clear down the hall, around the corner, and all the way down the next hall. Then I chased him back with it.
Dianne found some grahm crackers for Oliver to eat, since his mommy forgot not only toys and entertainment, but snacks too.
Oliver playing ball with Dianne
We ate lunch at Mickey Dees, then jetted home to drop off Todd, pick up the dogs, take Oli to preschool, take Doggies to the vet for shots, jet back, pick up Oliver, and finally return home. Exhausted. Cause in all of this running around poor Oli didn't get one speck of nap. He muscled through, getting punchier and clumsier as the day went on.
Phew. And now I've spent WAY too much time on the computer getting some "me" time in. Tomorrow is more therapy, and we have some guys coming to measure and give us an estimate on windows. Fun fun.
Sunday, August 31, 2008
Oops, it's been a while
Many people have started calling asking for an update on Todd's eye appointment, so I'm finally getting around to posting to let the Internet world at large know how it went.
It was great.
Ok, I'll give you a little more than that. It ended up being not nearly as long as we feared, nor as invasive. They did all kinds of eye tests (like for colorblindness, peripheral vision, etc) and no MRI's or CT scans or anything like that. And here's what they discovered. Todd can see just fine, it's the looking that's the problem. Yes, they are very different things, just like listening and hearing.
When tracking an object, he can follow it, even down, and when fixed on an object and moving his head he can stay focused on the object, even down. However when his brain tells his eyes to look down, they can comply, only painfully slowly, slower than I can move my eyes intentionally. So he needs practice to build up speed with which his eyes obey his brain.
We learned that he's actually very lucky to have suffered bilateral thelamic embolisms. The luck part is in the bilateral part. The areas of his thalmus that were affected by the stroke control specifically his ability to tell his eyes to point down, and also make it possible for him to focus on close range. So because the strokes were on either side, his defficit is equal. If he were to have had a stroke on only one side or the other, it would have caused worse problems in his vision, because one eye would be able to look down instantly, while the other dragged, and you can imagine that would make it hard to see.
We should be getting his contacts early next week, and we are hopeful that will help, and he'll be practicing looking down. Kind of key when you work on the computer.
We also saw Dr. Dodds, who oversaw his care while an inpatient. He eliminated Todd's Lyrica, in the hopes that he doesn't need it for the nerve pain anymore, and to help him not be quite so tired all the time.
Yesterday he went to Brett's to watch the U opening game, and we've been on a date, and took his mom to Millies. Todd's really doing great. Oh, and he will be able to do a driving test with his OT, who is also planning on seeing him at home instead of at LDS hospital so that she can help him get back to doing what he actually does at home and work.
Sue left yesterday, and while we all miss her like crazy, it is another good step in the right direction. She was such an amazing blessing and support to Todd, me and Oliver but we can now prove to ourselves that we're ready to get back to business.
Life is getting good.
It was great.
Ok, I'll give you a little more than that. It ended up being not nearly as long as we feared, nor as invasive. They did all kinds of eye tests (like for colorblindness, peripheral vision, etc) and no MRI's or CT scans or anything like that. And here's what they discovered. Todd can see just fine, it's the looking that's the problem. Yes, they are very different things, just like listening and hearing.
When tracking an object, he can follow it, even down, and when fixed on an object and moving his head he can stay focused on the object, even down. However when his brain tells his eyes to look down, they can comply, only painfully slowly, slower than I can move my eyes intentionally. So he needs practice to build up speed with which his eyes obey his brain.
We learned that he's actually very lucky to have suffered bilateral thelamic embolisms. The luck part is in the bilateral part. The areas of his thalmus that were affected by the stroke control specifically his ability to tell his eyes to point down, and also make it possible for him to focus on close range. So because the strokes were on either side, his defficit is equal. If he were to have had a stroke on only one side or the other, it would have caused worse problems in his vision, because one eye would be able to look down instantly, while the other dragged, and you can imagine that would make it hard to see.
We should be getting his contacts early next week, and we are hopeful that will help, and he'll be practicing looking down. Kind of key when you work on the computer.
We also saw Dr. Dodds, who oversaw his care while an inpatient. He eliminated Todd's Lyrica, in the hopes that he doesn't need it for the nerve pain anymore, and to help him not be quite so tired all the time.
Yesterday he went to Brett's to watch the U opening game, and we've been on a date, and took his mom to Millies. Todd's really doing great. Oh, and he will be able to do a driving test with his OT, who is also planning on seeing him at home instead of at LDS hospital so that she can help him get back to doing what he actually does at home and work.
Sue left yesterday, and while we all miss her like crazy, it is another good step in the right direction. She was such an amazing blessing and support to Todd, me and Oliver but we can now prove to ourselves that we're ready to get back to business.
Life is getting good.
Monday, August 25, 2008
Neuro update
This post won't be very entertaining, as I'm not feeling very good today, and I don't have the energy to be humerous. Hopefully it will at least be informative.
Today Todd saw the neurologist for a follow up to his hospitalization. He saw Dr. Choucair at IMC, who evaluated his vision, asked about his behavior, and made sure that Todd's care was being followed by all the right people. I'm glad we went, because he was able to straighten up some appointments that were redundant, and scheduled an appointment that we didn't even know that we were supposed to have.
He wants to see Todd in three months to do another MRA to look at the blood vesles in Todd's brain to see how the vertebral disection has healed. They expect that in a person of Todd's age that it will heal normally and not have any future issues.
He explained that the cerebelum controls the motor movement, and that damage there can make a person clumsy, overshoot the target, and lose balance. Damage to the thalmus can cause "phantom pain" where people can't really explain the pain. This is exactly what Todd is experiencing, however, he is vastly improved even from when he left the hospital. As the doctor checked his eyes there was almost no jerkiness in his eye movement, no nistagmus (jerking of the eye when held to the far right or left) and he managed to look down better than ever before, though in that he was more jerky, and said it hurt.
Tomorrow we go to the marathon appointment, with the neuro optical department. We've cancled the neurologist tomorrow after noon (one of those redundancies) so hopefully it won't be quite so horrible.
Today Todd saw the neurologist for a follow up to his hospitalization. He saw Dr. Choucair at IMC, who evaluated his vision, asked about his behavior, and made sure that Todd's care was being followed by all the right people. I'm glad we went, because he was able to straighten up some appointments that were redundant, and scheduled an appointment that we didn't even know that we were supposed to have.
He wants to see Todd in three months to do another MRA to look at the blood vesles in Todd's brain to see how the vertebral disection has healed. They expect that in a person of Todd's age that it will heal normally and not have any future issues.
He explained that the cerebelum controls the motor movement, and that damage there can make a person clumsy, overshoot the target, and lose balance. Damage to the thalmus can cause "phantom pain" where people can't really explain the pain. This is exactly what Todd is experiencing, however, he is vastly improved even from when he left the hospital. As the doctor checked his eyes there was almost no jerkiness in his eye movement, no nistagmus (jerking of the eye when held to the far right or left) and he managed to look down better than ever before, though in that he was more jerky, and said it hurt.
Tomorrow we go to the marathon appointment, with the neuro optical department. We've cancled the neurologist tomorrow after noon (one of those redundancies) so hopefully it won't be quite so horrible.
Tuesday, August 19, 2008
Today was a good day
After dragging Todd out of bed to go get his blood drawn (they have to do it every week to check his Coumadin levels) we returned to LDS hospital for more therapy. Today he met with Dr. Marc Steed, who is a Neuropsychologist. Essentially he is a psychologist who is more specialized and educated to help with the mental stuff that people who have gone through traumatic brain injury go through. His job, as he explained it, is to help Todd to improve his quality of life.
Marc is a wonderful person, and has been a great support to both Todd and I. After finding out that we were LDS, he has not refrained from calling on our shared religious background for examples, ideas, and strength, which has been very helpful.
We talked about Todd's excessive sleepiness, and Dr. Steed sent a note to Dr. Dodds (the Dr. at IMC (who is following Todd's care,) who called later, and asked us to go in tomorrow to do another blood draw to check his Depakote levels, and also had us reduce his Lyrica (for the nerve pain) to once a day. Hopefully that will help him so he's not sleeping 18 hours a day.
Dr. Steed gave Todd some homework for the week (actually it will be 2 weeks, we will miss next week due to that horrendous long eye appointment.) With regards to that missing filter, he is to try to catch himself when he's about to say something inappropriate, and tell me confidentially, and I'll try to help him say it in a more appropriate way.
Then he saw Michelle, the speech therapist, and finished up his baseline testing, which he did really well at. He did some reading comprehension, sequencing, and organization. He was given some story problems that even I had trouble with, but he did great. He had to write down meals for 2 days, and then compile a grocery shopping list, and did perfect.
Afterwards we decided to get some lunch, and went to our favorite Mexican restaurant, Su Casa. Those who saw Todd struggle with feeding himself at the hospital would be very impressed with how well he handled his smothered bean burrito and tostada. AND he ordered water, instead of Coke, which he wanted very much. He was talking about going to get one later somewhere cheaper, and was about to tell me where, when the waiter came over, and instead of saying the name of the place he sang quietly "you know, da da da da da, I'm lovin' it!" Ofcourse I knew he meant McDonaldas, but didn't know that Todd actually knew the name, it wasn't an episode of aphasia, he just didn't want the waiter to hear him say it and get mad! Cracked me right up!
At lunch he did some great problem solving, leaning back so he could see his plate better. He said that he hated having to do that, but the point is that he DID it, and it worked. It went right along with things the doctors have said, that he will be able to do all the same things he used to, but that he may have to make adjustments, and do them differently.
After we ate, he took the bill to the front and paid, including figuring the tip, adding it up, and signing the credit card slip. I was really proud of him.
Marc is a wonderful person, and has been a great support to both Todd and I. After finding out that we were LDS, he has not refrained from calling on our shared religious background for examples, ideas, and strength, which has been very helpful.
We talked about Todd's excessive sleepiness, and Dr. Steed sent a note to Dr. Dodds (the Dr. at IMC (who is following Todd's care,) who called later, and asked us to go in tomorrow to do another blood draw to check his Depakote levels, and also had us reduce his Lyrica (for the nerve pain) to once a day. Hopefully that will help him so he's not sleeping 18 hours a day.
Dr. Steed gave Todd some homework for the week (actually it will be 2 weeks, we will miss next week due to that horrendous long eye appointment.) With regards to that missing filter, he is to try to catch himself when he's about to say something inappropriate, and tell me confidentially, and I'll try to help him say it in a more appropriate way.
Then he saw Michelle, the speech therapist, and finished up his baseline testing, which he did really well at. He did some reading comprehension, sequencing, and organization. He was given some story problems that even I had trouble with, but he did great. He had to write down meals for 2 days, and then compile a grocery shopping list, and did perfect.
Afterwards we decided to get some lunch, and went to our favorite Mexican restaurant, Su Casa. Those who saw Todd struggle with feeding himself at the hospital would be very impressed with how well he handled his smothered bean burrito and tostada. AND he ordered water, instead of Coke, which he wanted very much. He was talking about going to get one later somewhere cheaper, and was about to tell me where, when the waiter came over, and instead of saying the name of the place he sang quietly "you know, da da da da da, I'm lovin' it!" Ofcourse I knew he meant McDonaldas, but didn't know that Todd actually knew the name, it wasn't an episode of aphasia, he just didn't want the waiter to hear him say it and get mad! Cracked me right up!
At lunch he did some great problem solving, leaning back so he could see his plate better. He said that he hated having to do that, but the point is that he DID it, and it worked. It went right along with things the doctors have said, that he will be able to do all the same things he used to, but that he may have to make adjustments, and do them differently.
After we ate, he took the bill to the front and paid, including figuring the tip, adding it up, and signing the credit card slip. I was really proud of him.
Saturday, August 16, 2008
Eye spy
Todd finally got in to see the eye doctor yesterday. They sent him to Moran, because they are the end all, be all of eye doctors. He saw Dr. Wu and Dr. Tabin, who did a full work up. Their findings were that Todd's eye trouble is not caused by muscle weakness, but rather by a disconnect between his brain and his eyes. Apparently this is due to the location of his strokes.
They said that there may be anecdotal studies about some exercise helping, or "standing on your head with a sugar cube on your tongue" and Todd piped in with "shooting shark piss up your nose" (a line from the movie Cutting Edge.) They told us that there aren't really any proven exercises that he can do that are known to help (though if we want to try, it certainly won't hurt.)
They then referred him to the neruo opthical team for a full work up. They specialize in hot they eyes are connected to the brain. We went to the front desk to make the appointment, and found out that when they said full work up, they meant it. It is expected to take between 4-7 HOURS!! I can't even imagine what kinds of tests they could dream up that would take that long. I imagine that there will be more CT scans and MRI's involved, but I can't understand what else they could possibly do.
He will go in at 10:00 am, and at 4:30 he has a follow up with neurology, so it will be a marathon day for both of us. Fortunately this appointment isn't until the 26th, so we have a little while to help build up his stamina. I'm guessing that's going to be an Adavan day though.
And by the way, Sue and I continue to see daily incremental improvement. It's not always somethingyou can put your finger on exactly, but Todd is continuing to be more and more "there" and becomes clearer and clearer in his thoughts and communication.
They said that there may be anecdotal studies about some exercise helping, or "standing on your head with a sugar cube on your tongue" and Todd piped in with "shooting shark piss up your nose" (a line from the movie Cutting Edge.) They told us that there aren't really any proven exercises that he can do that are known to help (though if we want to try, it certainly won't hurt.)
They then referred him to the neruo opthical team for a full work up. They specialize in hot they eyes are connected to the brain. We went to the front desk to make the appointment, and found out that when they said full work up, they meant it. It is expected to take between 4-7 HOURS!! I can't even imagine what kinds of tests they could dream up that would take that long. I imagine that there will be more CT scans and MRI's involved, but I can't understand what else they could possibly do.
He will go in at 10:00 am, and at 4:30 he has a follow up with neurology, so it will be a marathon day for both of us. Fortunately this appointment isn't until the 26th, so we have a little while to help build up his stamina. I'm guessing that's going to be an Adavan day though.
And by the way, Sue and I continue to see daily incremental improvement. It's not always somethingyou can put your finger on exactly, but Todd is continuing to be more and more "there" and becomes clearer and clearer in his thoughts and communication.
Wednesday, August 13, 2008
First day of out patient therapy
Todd had a big day today. He had two doctor appointments in one day, which meant that he could not sleep all day as he has been doing.
First we saw Dr. Peterson, our family doctor. We have been seeing him for many years, like around 8, so he knows us pretty well. He walked in the room with Todd's chart in hand, a stunned look on his face, and said "So Todd, what the heck?!" We told him that's what we've been saying. We told him all about what happened, and he said that he's been going over Todd's history, trying to figure out if there was something that he should have seen, or any warning signs, but couldn't come up with anything, so it is truly as we thought, just a freak accident that you can't see coming.
Not having seen Todd after he first had the strokes, but knowing the history, and how far he's come, he said with chagrin, like he didn't want to get our hopes up too high, that it might still be another month before Todd is able to start back at work. Another month?? Yippee!! That's infinitely better than the 3-4 months that the last doctor told us! Now before we all start throwing parties, let's all remeber that these are just guesses. So much of it is up to Todd, and even more of it is not up to any of us. So keep the prayers coming, they are still very much needed, felt, and appreciated. And please pay attention in your own lives for the blessings that I'm calling down on each and every one of you every single day.
Dr. Peterson has referred us to the Moran Eye Center at the University of Utah to be seen by their specialists. His vision is not good, but we can't determine ourselves if it's more than his decreased ability to move his eyes intentionally. (He can look straight ahead, and track movement, but the tracking is very jerky, he has a hard time focusing initially, but can't look down.) We hope that the eye doctor will have some ideas on exercises that he can do to improve his vision, because that's a big part of his frustration now.
Next we went immediately to his first out patient Speech Therapy appointment. She began as they all do with doing baseline evaluations, and these were much improved since his baselines in rehab. He found none of the oral muscle weakness which was present earlier. His aphasia (not being able to find words he wants) is still there, but is improving, but where he needs the most work (says me) is in his attention span. Anyone surprised here? Todd? I know. So she (Michelle) is going to work with him on strategies for improving his attention span and memory. I think I'll pay attention too, maybe I'll be able to remember where I put my brain.
In Todd recovery news:
Many of you who have spoken to Todd on the phone recently may have noticed the same inprovement that I'm about to mention. Since Todd first got his speech back his voice has been very monitone. In the last day or so both his mom and I have noticed a significant increase in the inflection of his voice. It's certainly not something that is vital to communication, but it makes understanding him a little easier. I can tell better when he's joking, (though even before the strokes he had great fun teasing me because I could never be sure). And it's also proof that his improvement and recovery is continuing.
He also has much better control over his emotions. He still gets overstimulated very easily, but instead of blowing up he is able to acknowledge it, and make steps to correct it. He's only used his Adavan (anti-anxiety medication) once since he's been home. In rehab he was using it almost every day.
And to leave you with a funny anicdote, Todd crashed as soon as we got home this afternoon. I went and ran errands, and our friend Misty came over later, about 7:30. The sun was just getting ready to set, when Todd woke up, and when he came downstairs he had different clothes on. He hadn't realized that he'd only been asleep for a few hours, and thought that it was 7:30 in the morning. It took some convincing to get him to believe that it was still Wednesday.
First we saw Dr. Peterson, our family doctor. We have been seeing him for many years, like around 8, so he knows us pretty well. He walked in the room with Todd's chart in hand, a stunned look on his face, and said "So Todd, what the heck?!" We told him that's what we've been saying. We told him all about what happened, and he said that he's been going over Todd's history, trying to figure out if there was something that he should have seen, or any warning signs, but couldn't come up with anything, so it is truly as we thought, just a freak accident that you can't see coming.
Not having seen Todd after he first had the strokes, but knowing the history, and how far he's come, he said with chagrin, like he didn't want to get our hopes up too high, that it might still be another month before Todd is able to start back at work. Another month?? Yippee!! That's infinitely better than the 3-4 months that the last doctor told us! Now before we all start throwing parties, let's all remeber that these are just guesses. So much of it is up to Todd, and even more of it is not up to any of us. So keep the prayers coming, they are still very much needed, felt, and appreciated. And please pay attention in your own lives for the blessings that I'm calling down on each and every one of you every single day.
Dr. Peterson has referred us to the Moran Eye Center at the University of Utah to be seen by their specialists. His vision is not good, but we can't determine ourselves if it's more than his decreased ability to move his eyes intentionally. (He can look straight ahead, and track movement, but the tracking is very jerky, he has a hard time focusing initially, but can't look down.) We hope that the eye doctor will have some ideas on exercises that he can do to improve his vision, because that's a big part of his frustration now.
Next we went immediately to his first out patient Speech Therapy appointment. She began as they all do with doing baseline evaluations, and these were much improved since his baselines in rehab. He found none of the oral muscle weakness which was present earlier. His aphasia (not being able to find words he wants) is still there, but is improving, but where he needs the most work (says me) is in his attention span. Anyone surprised here? Todd? I know. So she (Michelle) is going to work with him on strategies for improving his attention span and memory. I think I'll pay attention too, maybe I'll be able to remember where I put my brain.
In Todd recovery news:
Many of you who have spoken to Todd on the phone recently may have noticed the same inprovement that I'm about to mention. Since Todd first got his speech back his voice has been very monitone. In the last day or so both his mom and I have noticed a significant increase in the inflection of his voice. It's certainly not something that is vital to communication, but it makes understanding him a little easier. I can tell better when he's joking, (though even before the strokes he had great fun teasing me because I could never be sure). And it's also proof that his improvement and recovery is continuing.
He also has much better control over his emotions. He still gets overstimulated very easily, but instead of blowing up he is able to acknowledge it, and make steps to correct it. He's only used his Adavan (anti-anxiety medication) once since he's been home. In rehab he was using it almost every day.
And to leave you with a funny anicdote, Todd crashed as soon as we got home this afternoon. I went and ran errands, and our friend Misty came over later, about 7:30. The sun was just getting ready to set, when Todd woke up, and when he came downstairs he had different clothes on. He hadn't realized that he'd only been asleep for a few hours, and thought that it was 7:30 in the morning. It took some convincing to get him to believe that it was still Wednesday.
Tuesday, August 12, 2008
Words of encouragement
This recover stuff is HARD. Todd and I talked about it last night, and were reminiscing about all the physical therapy he had to do when he had shoulder surgery several years ago, and we thought that was hard! So I thought it might be nice to have everyone (I mean everyone) who reads this blog post a comment to let him know just how many people care, and are rooting and praying for him.
So how about it? Who all is out there? Let's hear it!
So how about it? Who all is out there? Let's hear it!
Oxygenation
Hi everyone, a couple of people have been concerned about an earlier post where I mentioned that Todd was on oxygen. Don't worry, there is nothing to fear. They discovered while he was in the hospital that he has sleep apnea (they could have just asked me; having slept with the man for the past 10 years I knew a long time ago that he was apneic.) They haven't done an official sleep study, but they noticed from all the times bugging him in the middle of the night for his vitals, that his oxygen levels were dropping below 90% at night, so for now they have him using a machine that takes room air and filters it until it's nearly pure oxygen. He has to wear a nasal cannula any time he sleeps and have this machine going.
After he sees our family doctor (later on this week) we will hopefully schedule a sleep study, after which he will most likely be fitted with a cpap (Continuous Positive Airway Pressure) machine, which forces his airways to stay open, thus eliminating the breath-holding spells that are sleep apnea. The cpap looks like this:
Dead sexy, right? Hey, whatever helps him get a restful nights sleep (and the not snoring isn't a bad side effect either.)
After he sees our family doctor (later on this week) we will hopefully schedule a sleep study, after which he will most likely be fitted with a cpap (Continuous Positive Airway Pressure) machine, which forces his airways to stay open, thus eliminating the breath-holding spells that are sleep apnea. The cpap looks like this:
Dead sexy, right? Hey, whatever helps him get a restful nights sleep (and the not snoring isn't a bad side effect either.)
Saturday, August 9, 2008
Non-update
People have been bugging me for an update, but I'm happy to report that in this case, no news is good news. Since Todd came home he's mostly been sleeping, waking on occasion to eat (he realized that he's been really hungry because he's only been eating about 2 meals a day on average.)
This morning I took him to get his blood drawn to check his Coumadin levels, and I was imensely proud of him being able to get himself up and moving and out the door in a relatively short amount of time, with very little "nudging" from me. The trip exhausted him, and he came home and slept. This evening we ordered Chinese take out and watched the Beijing Olympics opening ceremonies, with Todd's usual sarcastic comments in the background as he sat at the computer. He stayed up for a few hours then went to bed with Oliver in tow.
He starts therapy next week with Speech, but doesn't have OT until the end of the month, due to them being booked up and then having a week of training.
Other than that, there's really not much to report. He's doing well, and though I can tell that being home sometimes brings on sensory overload, he's been able to hold it together without the use of his anti-anxiety medication, which I'm very proud of him for. I'm glad that we have the medication just in case, and I know he has to work at it, but it is huge to be able to tell when he's heading down that path and be able to know when he's had too much, and excuse himself from the situation. Huge.
So that's really all there is to report. I know that he loves people to call him, but if he's sleeping he will not answer. His sleep now that he's on Oxygen is that of the dead. He's getting used to sleeping with the nasal cannula, and will have to readjust all over again when he gets the c-pap (it's not for sure, but I'm guessing that's what will happen.) He still snores like a banshee though! :)
This morning I took him to get his blood drawn to check his Coumadin levels, and I was imensely proud of him being able to get himself up and moving and out the door in a relatively short amount of time, with very little "nudging" from me. The trip exhausted him, and he came home and slept. This evening we ordered Chinese take out and watched the Beijing Olympics opening ceremonies, with Todd's usual sarcastic comments in the background as he sat at the computer. He stayed up for a few hours then went to bed with Oliver in tow.
He starts therapy next week with Speech, but doesn't have OT until the end of the month, due to them being booked up and then having a week of training.
Other than that, there's really not much to report. He's doing well, and though I can tell that being home sometimes brings on sensory overload, he's been able to hold it together without the use of his anti-anxiety medication, which I'm very proud of him for. I'm glad that we have the medication just in case, and I know he has to work at it, but it is huge to be able to tell when he's heading down that path and be able to know when he's had too much, and excuse himself from the situation. Huge.
So that's really all there is to report. I know that he loves people to call him, but if he's sleeping he will not answer. His sleep now that he's on Oxygen is that of the dead. He's getting used to sleeping with the nasal cannula, and will have to readjust all over again when he gets the c-pap (it's not for sure, but I'm guessing that's what will happen.) He still snores like a banshee though! :)
Tuesday, August 5, 2008
Home SWEET home
Blogger was down earlier, so I wasn't able to post this sooner, but...
We were pretty surprised when they came in this morning telling us that Todd was being discharged today. We hardly dared believe it. He still had all his therapy sessions, and even went to Best Buy, and picked out a CD, which he surprised me with.
Here he is at Best Buy with his OT Celeste and the Recreational Therapist Dave:
Afterword we stopped at the cafeteria for ice cream, and Todd was able to realize that he was getting overwhelmed, so we went back to his room and he rested while we got all sorts of discharge orders, prescriptions, and instructions.
Here he is finally exiting the hospital, with all his paraphernalia, being helped by his Nurse, Susan:
And finally arriving home, to be greeted by Oli and the doggies: He missed all three of them so much:
And our family, together in one piece, in one place.
TODD IS HOME!!!!!
We were pretty surprised when they came in this morning telling us that Todd was being discharged today. We hardly dared believe it. He still had all his therapy sessions, and even went to Best Buy, and picked out a CD, which he surprised me with.
Here he is at Best Buy with his OT Celeste and the Recreational Therapist Dave:
Afterword we stopped at the cafeteria for ice cream, and Todd was able to realize that he was getting overwhelmed, so we went back to his room and he rested while we got all sorts of discharge orders, prescriptions, and instructions.Here he is finally exiting the hospital, with all his paraphernalia, being helped by his Nurse, Susan:
And finally arriving home, to be greeted by Oli and the doggies: He missed all three of them so much:
And our family, together in one piece, in one place.
HOME
Monday, August 4, 2008
Sue's First Full Day with Todd, August 4th
I arrived in Salt Lake on Sunday late afternoon and went right to the hospital to visit Todd. Not really knowing how the strokes had affected Todd until I could see him with my own eyes, I had decided it would be better to prepare myself for the worst scenarios rather than thinking the opposite. After spending about an hour and a half there with Todd, Amelia, Oliver, Jenny, and Carl, I left the hospital knowing that Todd is on his way to recovery. We all hugged and talked and laughed. Todd struggled trying to find some words, and some of his sentences didn't end in the way that he started them, but we could understand all of his words, he was animated, and we saw that he still has his sense of humor. When all of us were talking at once, he stopped and listened, and when we'd stop talking, then he'd continue on with what he'd been saying. I left the hospital with an uplift in my heart.
Today I was at the hospital from 8:30 this morning until 9:30 tonight, and it was one wonderful day. Amelia was also there until about 3:00 this afternoon. Todd's speech, physical, and occupational therapy were at 9:00, 10:00, 11:00, and 11:30, one after the other, starting over again until lunch time, and were exhausting. They continued again at 3:30 and 4:30. I learned so much about how the brain works, I could see how the strokes have affected Todd, and I could tell how dedicated the therapists are in what they do.
One of the things Todd is going to have to really work with is staying focused and not getting distracted. Noise out in the hall or with someone else talking in the room, or even someone dropping something in another room distracts him from completing sentences or from doing his therapy. At times, too much stimulation (noise, lights, etc.) makes him nervous. There was a big breakthrough today of discovering that Todd's eyes don't focus quickly when looking from something in the distance to something close or vice versa, and how to work with this. This is going to be ongoing while that part of his brain continues to repair itself. We started figuring out how to work with this. It takes Todd time and persistence to make his eyes focus so he can see objects plainly, read, and even see what he is eating. What a great blessing it is to learn of the miracles that happen with the brain.
Late this afternoon Todd made brownies as part of his occupational therapy to check his skills on reading, following a recipe, his reasoning in fractions, setting the stove, and following through. Except for sharing 3 large brownies with a motorcycle accident victim and his mom (and a couple of small brownies with Jenny and Carl), Todd and I ate the whole 9x13 pan of brownies. They were delicious with cold milk. We laughed about eating the whole thing.
Todd and I had a wonderful hour and a half talk tonight where we discussed things dear to us.
We also learned that his discharge from the hospital is still on track. The staff at the hospital feels like there's not much more they can do to help with his recovery that can't be done with outpatient therapy. His discharge could still be Wednesday, although Todd wants it to be tomorrow because he feels that is the next step to his recovery.
This afternoon in his physical therapy, we were given many papers with exercises for him to do when he first comes home. The outpatient therapy for all three areas will be intense, and there will also be lab work done at least twice a week. So, when he's home, our time will be kept even more busy than now, because besides taking him to appointments, the more activities we can do to keep him focused, and even the good sleep he can get will help his brain recover faster.
We want you to know that we are so thankful for all of your prayers being said for Todd and for all of us, and that the prayers are being heard by our Heavenly Father, and we feel the affect of them on each of us, and especially on Todd. There is no doubt in our minds about this. And we are so thankful for meals that are being brought to the house. After intense days, being able to sit down and eat something that has been so kindly prepared has touched our hearts. Thanks to all of you. Please keep remembering Todd in your prayers.
Today I was at the hospital from 8:30 this morning until 9:30 tonight, and it was one wonderful day. Amelia was also there until about 3:00 this afternoon. Todd's speech, physical, and occupational therapy were at 9:00, 10:00, 11:00, and 11:30, one after the other, starting over again until lunch time, and were exhausting. They continued again at 3:30 and 4:30. I learned so much about how the brain works, I could see how the strokes have affected Todd, and I could tell how dedicated the therapists are in what they do.
One of the things Todd is going to have to really work with is staying focused and not getting distracted. Noise out in the hall or with someone else talking in the room, or even someone dropping something in another room distracts him from completing sentences or from doing his therapy. At times, too much stimulation (noise, lights, etc.) makes him nervous. There was a big breakthrough today of discovering that Todd's eyes don't focus quickly when looking from something in the distance to something close or vice versa, and how to work with this. This is going to be ongoing while that part of his brain continues to repair itself. We started figuring out how to work with this. It takes Todd time and persistence to make his eyes focus so he can see objects plainly, read, and even see what he is eating. What a great blessing it is to learn of the miracles that happen with the brain.
Late this afternoon Todd made brownies as part of his occupational therapy to check his skills on reading, following a recipe, his reasoning in fractions, setting the stove, and following through. Except for sharing 3 large brownies with a motorcycle accident victim and his mom (and a couple of small brownies with Jenny and Carl), Todd and I ate the whole 9x13 pan of brownies. They were delicious with cold milk. We laughed about eating the whole thing.
Todd and I had a wonderful hour and a half talk tonight where we discussed things dear to us.
We also learned that his discharge from the hospital is still on track. The staff at the hospital feels like there's not much more they can do to help with his recovery that can't be done with outpatient therapy. His discharge could still be Wednesday, although Todd wants it to be tomorrow because he feels that is the next step to his recovery.
This afternoon in his physical therapy, we were given many papers with exercises for him to do when he first comes home. The outpatient therapy for all three areas will be intense, and there will also be lab work done at least twice a week. So, when he's home, our time will be kept even more busy than now, because besides taking him to appointments, the more activities we can do to keep him focused, and even the good sleep he can get will help his brain recover faster.
We want you to know that we are so thankful for all of your prayers being said for Todd and for all of us, and that the prayers are being heard by our Heavenly Father, and we feel the affect of them on each of us, and especially on Todd. There is no doubt in our minds about this. And we are so thankful for meals that are being brought to the house. After intense days, being able to sit down and eat something that has been so kindly prepared has touched our hearts. Thanks to all of you. Please keep remembering Todd in your prayers.
Friday, August 1, 2008
Day 18
Yet another brief post. My dad said that after another call from the hospital, he and Amy were advised not to go to the hospital again today. Tomorrow both plan to go.
They said that Todd had his therapy in his room, but didn't say much more than that. I am sure tomorrow will have a lot more information.
They said that Todd had his therapy in his room, but didn't say much more than that. I am sure tomorrow will have a lot more information.
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